Comments on: Part 2: In the Heart https://glutendude.com/how-to-go-gluten-free-heart/ Celiac Disease Advocate Fri, 19 Feb 2021 17:39:33 +0000 hourly 1 https://wordpress.org/?v=6.3.2 By: BTAQ https://glutendude.com/how-to-go-gluten-free-heart/#comment-39239 Tue, 21 Jan 2020 21:54:22 +0000 http://glutendude.com/?p=699#comment-39239 In reply to margaret.

Canyon Bakehouse is the only bread and type of bagels my 6 year old with CD will eat. He also loves Against the Grain frozen pizza.

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By: Christina https://glutendude.com/how-to-go-gluten-free-heart/#comment-39238 Tue, 20 Dec 2016 10:52:57 +0000 http://glutendude.com/?p=699#comment-39238 Hi Linda- Great work on looking around. Def wood & plastics can harbor everything. The oats, unless certified gluten free, may contain wheat, barley, rye. They are naturally GF but they are harvested on the same equipment, trucks, mills, machines, equipment etc…So, when they are done with the wheat crop they start pulling in the oat crop. Complete contamination. I have purchased GF oats at Trader Joe’s but- they still bother me a bit so I really don’t eat them much. There was a GF lady in my Village who sources her oats from Canada. She said there was one supplier who is a dedicated GF operation.

You are lucky that you don’t feel the effects of being glutened. On the other end- It does make it hard to figure when and where you are picking up the gluten. Keep searching for your answers. You are doing great!

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By: Linda https://glutendude.com/how-to-go-gluten-free-heart/#comment-39237 Sat, 17 Dec 2016 14:32:49 +0000 http://glutendude.com/?p=699#comment-39237 In reply to Christina.

It didn’t occur to me to replace my cookware since my son and I are both GF now, I thought the dishwasher would take care if the gluten from previous use. I see now that my wood cutting board & plastic containers should go. Our difficulty is that we are both pretty much have no symptoms and can function pretty ok ( or we don’t realize how much better we could feel) so until routine blood work is done we don’t know if we’ve been getting gluten or not! Some other autoimmune issues have gotten better with the change in diet though, so I’m happy about that. I’m not sure if maybe should eliminate oats all together also and get new kitchen cookware and utensils so when I’m cooking I’m not sabotaging my GF ingredients, just wish there was a way to tell when we are ingesting gluten unknowingly so I could correct it since no outward physical reaction, want to prevent further damage to bones , liver etc. Thanks for support & info

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By: Christina https://glutendude.com/how-to-go-gluten-free-heart/#comment-39236 Fri, 16 Dec 2016 20:26:06 +0000 http://glutendude.com/?p=699#comment-39236 Linda- You are right it is so frustrating. But, stick with it; you will find out what’s getting you. I found that my reactions before I really got my body cleaned up took longer. Now, I know within the hour. It may be something so obscure…like your make-up, hairspray, licking envelopes. I found with this disease you can’t be careful enough. I threw out all my pots, pans, baking sheets, plastic spatulas anything that could hold gluten. All lotions, shampoo’s without ingredient lists etc… It’s like one big Easter Egg hunt for the glutenizer. Also, because it is an auto-immune disease many of us have other issues as well. So, we often find that it’s time to get rid of lactose or whatever else.

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By: Linda https://glutendude.com/how-to-go-gluten-free-heart/#comment-39235 Fri, 16 Dec 2016 03:24:56 +0000 http://glutendude.com/?p=699#comment-39235 In reply to Christina.

Thanks for the encouragement, I’m researching everything again to try and figure out what I’m missing. It’s hard to figure out since I don’t get an immediate reaction, for the past 6 months I thought I was doing great until I got blood work results, very frustrating

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By: Christina https://glutendude.com/how-to-go-gluten-free-heart/#comment-39234 Thu, 15 Dec 2016 03:36:00 +0000 http://glutendude.com/?p=699#comment-39234 In reply to Linda.

Linda-sorry your #’s are still so high. You are picking up gluten somewhere probably because it’s hidden everywhere. I don’t trust the Cheerios enough to eat them so, I can’t comment. Check your body lotions, shampoo’s, exposure around animal food & -‘all the hidden ingredients. It may be something as simple as a condiment like soy sauce or a processed meat…Etc….It takes a long time not to poison yourself. Don’t give up! It will get easier!

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By: Linda https://glutendude.com/how-to-go-gluten-free-heart/#comment-39233 Thu, 15 Dec 2016 01:13:34 +0000 http://glutendude.com/?p=699#comment-39233 Diagnosed with celiac 6 months ago. I was really good about eating GF , did most of my own cooking to make sure used all GF ingredients. Also was anemic and diagnosed with osteoporosis. Just had 6 month blood work checked and iron levels now good with the help from supplements but celiac numbers still way too high at 100!! I was expecting a big drop from all of my careful eating, could it be from eating the GF multigrain cheerios??

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By: ChrizzyT https://glutendude.com/how-to-go-gluten-free-heart/#comment-39232 Tue, 25 Oct 2016 12:25:24 +0000 http://glutendude.com/?p=699#comment-39232 In reply to Bryan Johnson.

Thanks for the blog, Gluten Dude. I have accepted this disease as a challenge…also to re-invent food to heal me instead of harm me. One thing i noticed as a stumbling block is people still try to eat like they used to before the disease. Get your head in this game- re-invent your favorites….

Like pasta- start spiralizing zucchini or squash- you won’t know the diff & you get all veggies.

Trader Joe’s just put out a GF pizza crust- they are yummy and 2 in a pack for under $4

-Christina

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By: DaVe https://glutendude.com/how-to-go-gluten-free-heart/#comment-39231 Sat, 15 Oct 2016 23:59:43 +0000 http://glutendude.com/?p=699#comment-39231 In reply to Bryan Johnson.

How ya doing since you saw the $275.00 dermatologist? Are you now completely GLUTEN FREE?

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By: Jennie https://glutendude.com/how-to-go-gluten-free-heart/#comment-39230 Sat, 10 Sep 2016 04:13:17 +0000 http://glutendude.com/?p=699#comment-39230 In reply to The Gluten Dude.

Thank u for taking time and effort to write. You are entertaining and inspiring. Newly diagnosed in May along with Crohn’s. Foodie with an Italian husband, it was a life changer. I am having some fun exploring new tastes and recipes. I am still morning foods I will never have again , like when I drove by our local apple orchard p, yesterday and realized I won’t be able to eat the apple cider donuts they make on site that are still warm with the sugar and grease shining up the bag. Sigh…. Anyway…
I know what you guys mean by knowing more than some health pros. Getting my infusion , yesterday, for Crohn’s and chatting with nurse. She said a friend with celiac was reintroducing gluten to her system because she thinks she has been desensitized. I suggested she didn’t have celiac and was maybe just sensitive…she insisted not the case. I said gluten still will mess u up, even if you don’t “feel” bad. She said they were in healthcare field and new what they were doing. Later she was telling me she was making g.f. Blueberry granola bars that were oats , etc… I said ” no” to oats and she thinks oats are fine. Yikes!
Another thing that gets me is restaurants touting g.f. Stuff that is in shared fryers. Even when I explain , ( nicely) that it isn’t g.f. anymore, they don’t believe me or give me a patronizing look and tell me ” yeah, ok ” or well it is probably OK for lifestyle choice folk or those that r just sensitive. Then I hold back a lot of not so nice comments and just ask how would a customer know that there “gluten free ” food is for those only that don’t need to be g.f.? . Blank stares in return…
Sorry for the babbling.,feels good to vent.

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