Comments on: I'm So Sorry Our Disease is Such an Inconvenience For You

By: Joseph

Joseph — Mon, 11 Jul 2022 12:50:09 +0000

I have a kid at school who’s mom is like that. once at a school function, the kid said “just one bite of this cupcake, come on, it won’t hurt you.” then proceds to shove it in my face. . . i told the mom “your son just killed me. the allergy stuff doesn’t work on auto-immune disorders. my mom will have a talk with our lawyer.”

Her face…

of course i din’t aculy die (im typin g this on a cat peed on keyboard, so kinda obvious)

By: Hope

Hope — Tue, 18 Sep 2018 18:33:41 +0000

I’m feeling hugely angry right now! I’ve got a colleagues birthday dinner to go to and it’s been booked at a Chinese restaurant! I don’t want to take the risk because they don’t even have a gluten free menu. I was explaining to one of my colleagues that I won’t be able to go to the dinner but if someone can message me when everyone is close to finishing their meals then I will come along to have a drink with them. My friend, who booked the restaurant, told me that someone she knows goes there to eat and she’s fussy too but eats the chicken and fries! I told her that I’m not being fussy…I have celiacs therefore it’s not a choice and if I have gluten I get very unwell! Another friend then told me that I shouldn’t have said anything and should be going for a meal because I am being unsociable and my colleagues probably feel that I’m really saying, “Look at me! I’m special and want attention!” I was only diagnosed recently so this is all relatively new. I’ve known since I was a kid that I had a wheat allergy, which was diagnosed through testing but have been told for years that I have IBS also. It was only this last year that a new doctor said I had way too many symptoms including my iron levels dropping while taking iron tablets! Finally a proper diagnosis but now I have to put up with ignorance and hurtful comments. To be told I’m attention seeking is just taking it way too far!!! Anyone else have this issue and how do you respond?

By: Dee

Dee — Thu, 02 Nov 2017 21:36:32 +0000

I’M SO MAD! I KNEW BETTER!!! I had been GF since 2013! Please excuse me, my brain is on gluten and I am having trouble putting my thoughts together succinctly.

For several months, my tummy has been hot some days, but not others. Over the last few days I’ve been feeling like Roto-Rooter cleaned out my intestines with heavy grade sandpaper. I HAD been feeling pretty good and was getting stronger until the last couple weeks when I realized that I am likely getting gluten and may have been for several months (cross contamination), and for the life of me could not see where it was coming in. I am happy to announce after eating just potatoes and chicken, that I did indeed find it today.

You cannot trust the label that says it is “GLUTEN FREE” in bold print on the front. Stay clear of CLAEYS candy. After many phone calls and still no response, I got hold of a company that sells CLAEYS product and explained my health problem (in detail). She heard me and said they would put a notice on all their candies that are made in facilities that manufacture wheat. I continue to have trouble getting hold of the manufacturer.

I AM MAD! At myself as well as CLAEYS. 1 800 348 2239 is the number listed on the package, but no one answered so I left a message asking them to call me. I did not mention gluten free, but I will if I don’t hear from them.
If any of you feel like being activists, (politely of course), to add on their packaging that it processes wheat, it would be helpful so no one else gets sick.

Thanks for listening to me. comments are all welcome 🙂 Please tell me what soothes your gut. Waaa!

By: Gigi

Gigi — Wed, 11 Nov 2015 04:10:40 +0000

In reply to Melissa. Hi Melissa, Not to sound cold but you have to find a way to make your daughter not care about not getting a cupcake as soon as possible. I left a comment above forever ago so you can read about my allergies but the earlier you learn it's not meant to leave you out, it's just how the world works, the better. I could never eat stuff at school unless it had an ingredient list so I feel your daughter's pain but there are ways to cope. I never eat cakes from bakeries so pretty much every party I went to as a kid, I was your daughter. I never had an alternative, I just hung out while people ate cake. For me, I always just enjoyed the break from class. Help her find the alternative fun without the food. Total bummer about her foot!!! I hope it heals soon.

By: Gluten Dude

Gluten Dude — Tue, 10 Nov 2015 20:12:58 +0000

Hang in there Melissa…

By: Melissa

Melissa — Tue, 10 Nov 2015 19:42:22 +0000

Let me start of by saying, this: “Comparing yourself to a child is ridiculous. Actually, in this case, maybe it’s not.” Made me LOL!

Okay, I came across your article because . . . . my daughter broke a growth plate in her foot and she is in a boot and has an excuse for P.E. I asked her teacher to keep her in from recess too, because a. it’s too cold to be outside and not moving and b. what kid should be required to sit on the cold ground for 20 minutes while his/her friends run and play? I’m wondering WHY, as a parent, I can’t excuse my child from recess when she’s wearing a boot for her broken foot???

In calling my husband, because I’m sitting here shaking in my head (so much it hurts, lol), he reminded me of all the issues we’ve had with the school and accommodations with her Celiac disease. They make us feel like it’s such a huge inconvenience to have her around, why? I just don’t know. I don’t care for her teacher this year, I asked for birthdays of students, but she doesn’t have time to get that to me, so my kiddo comes home in tears cuz there were treats and she didn’t have her GF cupcake (which we’ve been doing for the past 3 years with no issues). The principal even told us they don’t have to accommodate her because it’s not in her record that she has a life threatening illness. Well, she was diagnosed 3 years ago and we told the school about it, why, then, wasn’t it mentioned they needed this paperwork?????

UGH, ignorant people! I just can’t say anymore! I’m calling the school superintendent, but am not feeling very hopeful!

By: CR

CR — Fri, 20 Mar 2015 22:45:00 +0000

Well, the bitchy side of me wants to say “there’s no cure for stupidity” but honestly I feel sorry for her kids. They will miss out on a lot not learning how to be empathetic to others needs and what if the shoe is on their foot?

As far as the “p-ification” of America, aside from the fact that it is just an annoying term, what does it say about people that can’t or won’t sacrifice a little to help someone out or stand up for others and show compassion? That’s whimpy!

By: Ken

Ken — Tue, 24 Feb 2015 19:25:45 +0000

In reply to Gluten Dude.

It’s just so easy to toss any semblance of reason, because there are no consequences to saying such things.

I honestly don’t wish harm, or illness on anyone, but I have to remind these people that it could be THEIR child. I don’t have kids, but I am responsible for my developmentally disabled brother. I KNOW I will do anything possible to keep him from harm. I can’t understand how this doesn’t register with some parents. The lack of empathy is saddening and disturbing, but I will continue to be on the side of reason, even if it means running into brick walls.

By: Gluten Dude

Gluten Dude — Tue, 24 Feb 2015 18:52:32 +0000

In reply to Ken. There are no words Ken. When caring about others means being a p*ssy, it just goes to show how far the human race has fallen.

By: Ken

Ken — Tue, 24 Feb 2015 18:32:17 +0000

Something that made me think of this thread:
My cousin’s wife posted on facebook the other day complaining that her kids couldn’t bring peanut butter to school because one child was allergic. I asked her if she thought it was ok to ostracize one child to appease the rest. She responded that it was her kids, and all of the others that were being ostracized… Ok, maybe she didn’t get the meaning of ostracized. In the meantime the comments that piled up were of the “toughen the kid up” and “pussification of America” ilk. My niece, who is a brilliant RN, reminded them that they were speaking about a child.
I went the more, um, Brooklyn route, by calling them keyboard warriors and asking them to come see if they could toughen me up. I also expressed my sympathy to my cousins kids, who would have to live without something they could easily eat ANYWHERE else, so another child wouldn’t get sick, or possibly die. How awful for them. I know- I lowered myself, but it shut them up.
Then I reminded my cousin’s wife about the genetic possibility that her kids could have celiac, considering my brother and I have it, my mom likely had it, and my mom, two of her brothers, and their mother all died relatively young from cancer.
Crickets. Nothing.
Besides my siblings and their families, nobody on my mom’s side acknowledges the possibility of celiac. Sad, considering the 180 I’ve done since I’ve been diagnosed.