Comments on: We're Celiacs…We're Not Victims https://glutendude.com/celiacs-are-not-victims/ Celiac Disease Advocate Sat, 14 Oct 2023 13:52:05 +0000 hourly 1 https://wordpress.org/?v=6.3.2 By: Tara https://glutendude.com/celiacs-are-not-victims/#comment-20319 Tue, 18 Jul 2017 20:52:23 +0000 http://glutendude.com/?p=9000#comment-20319 In reply to Dick L..

There is already one https://nimasensor.com/

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By: Amy https://glutendude.com/celiacs-are-not-victims/#comment-20318 Mon, 19 Jun 2017 20:03:02 +0000 http://glutendude.com/?p=9000#comment-20318 In reply to Kai’.

Totally agree with you Kai’.

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By: R. D. https://glutendude.com/celiacs-are-not-victims/#comment-20317 Mon, 19 Jun 2017 13:32:03 +0000 http://glutendude.com/?p=9000#comment-20317 In reply to Trish.

Same here. I’d love to just have celiac. Can I have an animal for my UC?

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By: Akeena01 https://glutendude.com/celiacs-are-not-victims/#comment-20316 Sat, 08 Apr 2017 06:21:36 +0000 http://glutendude.com/?p=9000#comment-20316 In reply to IrishHeart.

I’m nineteen and I 100% support that celiac is a disability. I have such an intense reaction to touching gluten that i am unable to work in ANY food or fast food location, I am constantly sick, I struggle to maintain a decent average due to brain fog, and just being sick all the time. If the Canadian government can accept celiac as a disability, (thank god) then so should celiacs. For older celiacs it may not be as important, but for youth and students it is so important to have older celiacs supporting our right for protection and rights, which unfortunately need to be defined as a disability to count as “relevant” to all systems within education systems as well as the government student funding programs.

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By: Jo https://glutendude.com/celiacs-are-not-victims/#comment-20315 Mon, 31 Oct 2016 01:41:29 +0000 http://glutendude.com/?p=9000#comment-20315 In reply to Kai’.

I am a 10 yr + Celiac and still learning. I have recently, in the past few months, discovered that I can not use anything on my long beautiful curly locks that has gluten in it. You would be amazed at all of the gluten we have been putting on our largest organ, our skin. After months of antibiotics with no results, I figured it out myself. My hair literally hurt to touch my skin. My point is, I would love to have a dog that could tell me that I cant use that shampoo, etc. The FDA said as many times as they have to change the name of gluten they will continue to do so because it is the most marketable and addictive food additive there is. GIVE ME MY DOGGIE DOG PLEASE. If you have information on where I can get a gluten sniffing dog, please let me know. JoAttyy@gmail.com. We are so strong to live with such a silent killer. I love life and I will not go down with out a fight. OH, P.S. I love to eat out !!! I look at the menu and make up my own dish from the ingredients I see they have available. It is fun actually.

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By: ChrizzyT https://glutendude.com/celiacs-are-not-victims/#comment-20314 Sat, 29 Oct 2016 12:19:15 +0000 http://glutendude.com/?p=9000#comment-20314 I know a lot of people are questioning the validity of a gluten sniffing dog; but why not? I retired from a career in law enforcement. We trained our dogs to sniff out certain chemicals that go into explosives. We trained our dogs to sniff out dead bodies. We trained our dogs to sniff out marijuana, hash, cocaine, and every other drug out there. The bloodhounds are trained to find people by following a scent trail. Sometimes this trail is days old and the bloodhound superior in olfactory for this. (If you know about scents…they follow the little sheds of skin particles we shed as we walk and move etc…)

So, if I would trust my life that a canine would find a bomb; why would I not trust my life that my canine would find gluten? This is cool! Maybe one more tool to help us stay healthy…Just something to ponder?

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By: Steven https://glutendude.com/celiacs-are-not-victims/#comment-20313 Sun, 12 Jun 2016 22:06:51 +0000 http://glutendude.com/?p=9000#comment-20313 In reply to Gluten Dude.

Of course we are all victims! I just got out of highschool, got a job and was living fine and then I got sick and all the doctors thought I was faking it even when I would be in the ER every other week puking and going into shock. I then had to quit my job because I sat in bed for 4 hours every morning in severe pain, I would go a few days only drinking the smallest amounts of water only to find out I had celiac disease and then folic acid deficiency and I still can’t get a job or pay the rediculous prices for gluten free food let alone my hospital bills and the government won’t help me and I am barely surviving right now living off of rice cakes. How am I not a victim?

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By: GillianM https://glutendude.com/celiacs-are-not-victims/#comment-20312 Tue, 16 Feb 2016 04:07:34 +0000 http://glutendude.com/?p=9000#comment-20312 In reply to Deb.

Deb, this post is old, but if you do see my response I just wanted to say that you are not alone. My daughter was 9 when diagnosed and her numbers were so high Duke had them checked in 4 other labs to verify. She is now 15 and her numbers a miles away from normal range. Specialist now believe that they may never come down to “normal range” I found this post while researching alert dogs. Both of my daughters are celiac and have extreme reactions, not just physical but also emotional and one even has short term memory loss. If I can get an alert dog I will, I don’t think that makes my girls victims, it gives them control over their health and empowers them to go and do simple things like an impromptu sleepover, or try a new restaurant while traveling without fear. If it works for you and helps you take back control, then isn’t that the opposite or a victim? I hope you have found a solution.

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By: J https://glutendude.com/celiacs-are-not-victims/#comment-20311 Thu, 08 Oct 2015 23:26:47 +0000 http://glutendude.com/?p=9000#comment-20311 In reply to Gluten Dude.

Actually, I don’t think it’s overboard at all. I have extreme anxiety about contamination and I would feel much more empowered and able to live a more functional life with at least some form of insurance that I am not being contaminated. Because avoiding contamination can be much harder for some people than it is for others, and it’s very difficult to avoid for me (full-time college student with two part-time jobs that only add up to 21 hours of minimum wage pay per week, no license or access to a car, and no way to be sure that even my own home is free of contaminants). I think it’s an excellent idea. And I also disagree with your condemnation of the words “disability” and “victim.” We are, in a sense, the victims of a society that excludes us from many opportunities because we aren’t given the options we need and deserve. This situation is in fact disabling. Celiac itself is also disabling by the definition of the word. We are physically and often mentally impaired by the disease. I don’t think that’s anything to be ashamed of either. I don’t sit around and mope about being disabled or a victim, and I don’t look down on victims and disabled people in general, as you seem to do. I can be those things and also be a strong person who fights for the same consideration afforded to everyone else.

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By: Andrea https://glutendude.com/celiacs-are-not-victims/#comment-20310 Tue, 06 Oct 2015 19:49:21 +0000 http://glutendude.com/?p=9000#comment-20310 While I agree that it is over-the-top to bring the dog to the grocery store were every label is available for review, I don’t see anything victimizing about her decision to use a dog to help manage the disease. She isn’t claiming she NEEDS the dog to stay alive and healthy; it’s just another safety net to help her accomplish a normal lifestyle.

If we had a litmus test where we could simply stick a paper in our food/drink and know right away if there was any cross-contamination wouldn’t every one of us use it every time? We are not disabled, we are not controlled by this disease, but we can all appreciate the importance of doing our due diligence. The dog just does it better than we ever could (no matter how much research, preparation, or interrogating we do).

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